People Power United joins coalition efforts to tell the Senate reject H.R. 1 because it cuts Medicaid and will harm older adults, people with disabilities, and caregivers.
🗽A well informed citizenry is the best defense against tyranny.
People Power United joins coalition efforts to tell the Senate reject H.R. 1 because it cuts Medicaid and will harm older adults, people with disabilities, and caregivers. Shout out to Justice in Aging for leading this effort.
📄 Read the letter sent on behalf of our People Power United members:
June 5, 2025
Dear Leader Thune, Leader Schumer, and Members of the Senate:
The undersigned 1,100 organizations who are members of the Disability and Aging Collaborative (DAC), the Health and Long Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities (CCD), and allied organizations write with grave concern about the “One Big Beautiful Bill Act” because of the harmful cuts and changes to Medicaid and the Affordable Care Act (ACA). The bill itself will result in at least 10.9 million people becoming uninsured, including millions of people with disabilities and older adults. When factoring in expiration of ACA premium tax credits, the number of people who will become uninsured rises to 16 million.. We urge you to reject this bill.
As we wrote previously on May 12th and April 28th, 2025, the Medicaid provisions proposed and included in the budget reconciliation legislation are dangerous and life-threatening. These provisions, which CBO estimates would terminate Medicaid and CHIP coverage for at least 10 million people and leave 7.8 million people who had Medicaid uninsured, include:
● Mandating draconian work requirements that will take health care away from over 5 million people, many of whom are people with disabilities, older adults, and caregivers.
● Freezing provider taxes and state-directed payments that will leave states with little flexibility to finance their programs to meet unexpected needs and lead to cuts in home- and community-based services (HCBS) and other services states have the option to provide.
● Stopping the Eligibility & Enrollment rules that reduce barriers to coverage and care for people with disabilities, older adults, and children who are already eligible for Medicaid. This rollback would make Medicaid less efficient, make Medicare unaffordable for nearly 1.4 million older adults and people with disabilities who are dually eligible for both programs, terminate coverage for 400,000 children, and reverse progress to diminish Medicaid’s institutional bias by helping people with predictable HCBS monthly costs to avoid gaps in coverage. ● Shortening the retroactive coverage period threatens financial disaster for people who experience a sudden health crisis and who need long-term care.
● Reducing and freezing the home equity limit will disproportionately harm cash-poor older adults on fixed incomes who have accumulated equity in their homes over many years. ● Effectively eliminating the nursing home minimum staffing rule disregards decades of research showing that higher staffing levels reduce injuries for staff and residents, improve care, and would save 13,000 lives annually.
● Mandating cost-sharing on Medicaid enrollees with very low incomes, which acts as a barrier to care.
● Implementing onerous eligibility checks that will interrupt the continuity of care for enrollees while ballooning administrative costs and uncompensated care for the uninsured. ● Penalizing states for using state-only funds to cover immigrants regardless of their status, which would increase uncompensated care in emergency rooms and drive up costs for everyone.
Our April 28 letter signed by 111 national organizations and over 325 state and local organizations along with our Answers to FAQs explain that we oppose any cuts and harmful changes to Medicaid. Our concerns with these policies have grown as we consider their combined impact on adults, infants, children and students with disabilities; older adults; caregivers; and families. As we’ve repeatedly emphasized, there is no way to carve out people with disabilities and older adults from the harm of these cuts.
In particular, we are concerned with the mandatory work requirements, which are more severe than previous federal proposals and are designed to terminate health care for more than 5 million people with very low incomes. The number of people who will become uninsured will be even higher if states are required or even allowed to implement work requirements in 2026 (as prescribed in the House-passed bill) because states are not equipped to take on this burdensome and costly task, especially when facing reduced federal funding. Rushing implementation will only widen the cracks people will fall through.
Despite claims to the contrary, many of those individuals who will have their coverage taken away will be people with disabilities, older adults between the ages of 50 and 65, and low-wage workers who provide services for people with disabilities. Forcing older adults to comply with a work requirement up to age 65 puts them at risk of developing long-term health complications, not only jeopardizing their health but also increasing costs on Medicare. Qualifying for Medicaid with a disability is a strict and narrow pathway that excludes many people with disabilities. As a result, millions of people with disabilities can only qualify through the expansion. Direct care workers and caregivers for people with disabilities are also frequently covered by Medicaid Expansion. States have no way to automatically or easily identify these populations even if they want to exempt them. When similar exemptions were provided in Georgia, only 7,000 individuals (or 2%) of a potential pool of 345,000 eligible were able to receive coverage after 20 months. In Arkansas, an estimated 95% of people targeted by work requirements were working or should have met an exemption, and yet nearly a quarter of targeted low-income people lost coverage in just seven months. That means most of the people who lost coverage were working or should have been exempt. In many ways, this new policy is even worse.
Sudden life events, emergencies, and personal tragedies like a miscarriage that prevent individuals from meeting the work requirement will also result in coverage being terminated. Many low-wage workers are at risk of having their coverage taken away, as we saw with Luke Seaborn of Georgia, a former supporter of the Pathways program who has since had his coverage taken away twice when
the state changed the reporting process without notifying him. Work requirements will also impact direct care workers, who often have unstable scheduling or work part-time—job features that are incompatible with work requirements. Taking coverage away from these workers will exacerbate workforce shortages and hamper access to community-based services for people with disabilities and older adults.
Finally, exemptions themselves are barriers that will disrupt and prevent coverage. Processes to prove eligibility are often inaccessible for people with mobility and intellectual disabilities due to requirements for signed physical paperwork from far-away offices or the lack of plain language resources on applying. People with disabilities can get caught in a catch-22 where they need health coverage in order to get the paperwork to show they are disabled, but cannot access health coverage without an exemption. People with chronic illness, substance use disorders, or mental health disabilities will be in need of services while they wait for their exemption to be approved and are at increased risk of their condition worsening and homelessness where they will be lost to the system or die.
Limits on provider and insurer taxes and any other funding also present a critical threat to Medicaid coverage and access to care for older adults and people with disabilities. When the federal share of Medicaid funding is reduced, states are forced to cut services, including reducing the number of service hours an individual receives, limiting eligibility, reducing provider payment rates, or making up the difference by taking funding from other critical areas. States must continue offering mandatory services, meaning they will look to cut optional services in the face of a budget shortfall. The vast majority of Medicaid spending on optional services (86%) are services that support people with disabilities and older adults. In particular, HCBS are optional services and comprise over half of all optional state Medicaid spending. Between 2010 and 2012, in response to a reduction in federal Medicaid funding following the Great Recession, every state and DC cut spending to one or more HCBS programs. Service reductions and reducing the number of people enrolled greatly increased the waiting lists for the HCBS programs. Without Medicaid, people with disabilities and older adults who need care to remain in their homes and communities have nowhere else to turn. Without access to critical benefits like HCBS, individuals are more likely to end up in costly institutional settings, experience preventable hospitalizations, and face a decline in overall health and well-being.
Conclusion
We have heard from some members of Congress that the purpose of this bill is to protect Medicaid for the “most vulnerable populations,” but it does no such thing. This bill would take coverage away from millions of people with disabilities, older adults, pregnant women, and children by making it as difficult as possible to access the healthcare they are eligible to receive. If Congress wants to protect
Medicaid for people with disabilities and older adults, they should reject this bill. There is no justification for enacting any of these cuts to Medicaid and taking away healthcare.
If you have any questions, contact Natalie Kean (nkean@justiceinaging.org) and Tory Cross (tory@caringacross.org).
Sincerely,
224 National Organizations
ACA Consumer Advocacy
Access Ready Inc
ADA Watch/Coalition for Disability Rights & Justice (CDRJ)
ADAPT National
Advocates for Trans Equality (A4TE)
AFT: Education, Healthcare, Public Services
Aggie Perilli Communications Intl
Aging Life Care Association
AiArthritis
Alexander Graham Bell Association for the Deaf and Hard of Hearing
Alliance for Expanding America's Workforce
Alliance for Rights and Recovery
Allies for Independence
American Academy of Nursing
American Association of People with Disabilities
American Association of University Women (AAUW)
American Association on Health and Disability
American Civil Liberties Union
American Federation for Aging Research (AFAR), Inc.
American Foundation for the Blind
American Friends Service Committee
4
American Humanist Association
American Music Therapy Association
American Network of Community Options and Resources (ANCOR)
American Network of Oral Health Coalitions
American Spinal Injury Association
American Therapeutic Recreation Association
Asian & Pacific Islander American Health Forum (APIAHF)
Ask Nurses and Doctors
Assistive Technology Industry Association
Association of Assistive Technology Act Programs
Association of Late-Deafened Adults
Association of People Supporting Employment First (APSE)
Association of Programs for Rural Independent Living
Association of University Centers on Disabilities
Autism Society of America
Autistic People of Color Fund
Autistic Self Advocacy Network
Autistic Women & Nonbinary Network
Bazelon Center for Mental Health Law
Be A Hero
Blue Future
Campaign for a Family Friendly Economy
Care in Action
Caregiver Action Network
Caregivers for Compromise
Caring Across Generations
Catholics Vote Common Good
Center for Common Ground
Center for Economic and Policy Research
Center for Health Law and Policy Innovation
Center for Medicare Advocacy
Center for Public Representation
Child Neurology Foundation
Christopher & Dana Reeve Foundation
Clearinghouse on Women's Issues
Clinician Task Force
Coalition for Hemophilia B
Coalition on Human Needs
Common Cause
CommunicationFIRST
5
Community Catalyst
Community Change Action
Congregation of Our Lady of Charity of the Good Shepherd, U.S. Provinces
Council of State Administrators of Vocational Rehabilitation (CSAVR)
Deaf Equality
Deaf Seniors of America
Debt Collective
Designing Accessible Communities
Disability Belongs
Disability Research Center
Disability Rights Education and Defense Fund (DREDF)
Diverse Elders Coalition
DQIA: Disabled Queers in Action!
Elder Justice Coalition
Epilepsy Foundation of America
Equal Rights Advocates
Esperanza United
Families USA
Family Caregiver Alliance, National Center on Caregiving
Feminist Majority Foundation
Freedom Writers Collaborative
Futures Without Violence
Generations United
Gerontological Society of America
GO2 for Lung Cancer
Grantmakers In Aging
Gus Gear, Inc.
Hand in Hand: The Domestic Employers Network
Health Care for America Now (HCAN)
Homebase
Huntington's Disease Society of America
Hydrocephalus Association
I Love You, Lead On Community
Institute For Exceptional Care
Institute for Women's Policy Research
International Christian Concern for Development
International Registry of Rehab Technology Suppliers
J Gould Consulting
Japanese American Citizens League
Just Solutions
6
Justice in Aging
KIDS V CANCER
Lakeshore Foundation
League of United Latin American Citizens (LULAC)
League of Women Voters of the United States
Legal Action Center
Little Lobbyists
Mayday Movement USA
MEAction
Medicare Rights Center
MomsRising
MoveOn
Muscular Dystrophy Association
NAACP
National Academy of Elder Law Attorneys (NAELA)
National Action Network
National Adult Day Services Association (NADSA)
National Adult Protective Services Association
National Advocacy Center of the Sisters of the Good Shepherd
National Alliance for Caregiving
National Alliance for Direct Support Professionals (NADSP)
National Asian American Pacific Islander Mental Health Association (NAAPIMHA) National Association of Councils on Developmental Disabilities
National Association of Local Long Term Care Ombudsman (NALLTCO)
National Association of Nutrition and Aging Services Programs
National Association of Social Workers (NASW)
National Association of State Long-Term Care Ombudsman Programs
National Association of Statewide Independent Living Councils
National Association of the Deaf
National Center for Dignity in Healthcare and Community Living for People with Disabilities National Center for Law and Economic Justice
National Center for Learning Disabilities
National Center for Pediatric Palliative Care Homes
National Coalition for the Homeless
National Collaborative for Transformative Youth Policy
National Committee to Preserve Social Security and Medicare
National Consumer Law Center, on behalf of our low-income clients
National Consumer Voice for Quality Long-Term Care
National Council of Jewish Women
National Council on Aging (NCOA)
7
National Council on Independent Living
National Diaper Bank Network
National Disability Institute
National Disability Rights Network (NDRN)
National Domestic Workers Alliance
National Down Syndrome Congress
National Education Association
National Employment Law Project (NELP)
National Health Care for the Homeless Council
National Health Council
National Health Law Program
National Hispanic Council on Aging
National Hispanic Medical Association
National Indian Council on Aging, Inc.
National Mental Health Consumers' Self-Help Clearinghouse
National Multiple Sclerosis Society
National Organization on Disability (NOD)
National Partnership for Women & Families
National PLACE
National PLAN Alliance (NPA)
National Respite Coalition
National Women's Law Center
NBJC
NCBA Inc.
NETWORK Lobby for Catholic Social Justice
Network of Jewish Human Service Agencies
Network of Occupational Therapy Practitioners with Disabilities & Supporters (NOTPD) New Disabled South
Nurses for America
OT Leaders and Legacies Society
Our Mother's Voice
PDA
People Power United
PHI
Popular Democracy
Popular Democracy In Action
Post-Acute and Long-Term Care Medical Association
Prevent Blindness
Protect Our Care
Public Advocacy for Kids (PAK)
8
Reframe Health and Justice
Rehabilitation Engineering & Assistive Technology Society of North America (RESNA) SAGE
Service Employees International Union (SEIU)
SiX Action
Society of the flora, fauna & friend
Southeast Asia Resource Action Center (SEARAC)
SPAN Parent Advocacy Network (SPAN)
Special Needs Alliance
Supermajority Education Fund
TASH
TDIforAccess
The Advocacy Institute
The AIDS Institute
The Arc of the United States
The Carefullist
The Coelho Center for Disability Law, Policy, and Innovation
The Kelsey
The Leadership Conference on Civil and Human Rights
The Live Oak Project
The National Alliance to End Homelessness
The Partnership for Inclusive Disaster Strategies
The Resilient Activist
The Self-Direction Center
The Workers Circle: Jewish culture for a Just World
Touch the Future Inc
Triage Cancer
UnidosUS
United Church of Christ
United Spinal Association
US Gender and Disability Justice Alliance
USAging
Village to Village Network
Voices of Health Care Action
VOR - A Voice Of Reason
Well Spouse Association
Wilson Clinical Services, PLLC.
Working Families Party
Workplace Fairness
World Institute on Disability
9
Young Center for Immigrant Children's Rights
Young Invincibles
YWCA USA
875+ State & Local Organizations
Alabama
Accessible Alabama
Alabama Arise
Alabama Disabilities Advocacy Program
Alabama Lifespan Respite
Alabama Resisters chapter of Indivisible
Center for Common Ground
Epilepsy Foundation Alabama
Five Horizons Health Services
Joy Bells Alzheimers and Dementia Ministries
Mephibosheth LLC
Mid South Liver Alliance
New Disabled South
Serving at- risk families everywhere, Inc.
The Arc of Alabama
Thrive Alabama
UCP Huntsville
Alaska
ACLU of Alaska
Alaska Association on Developmental Disabilities
Alaska Christian Conference
Alaska Governor’s Council on Disabilities and Special Education
Cindy and Vic's R&R, Inc.
Disability Law Center of Alaska
Epilepsy Foundation Alaska
Hope Community Resources
Independent Living Center
Southeast Alaska Independent Living, Inc.
The Arc of Anchorage
10
Arizona
Ability360
American Civil Liberties Union of Arizona
Arizona ADAPT
Arizona Association of Providers for People with Disabilities
Arizona Center for Law in the Public Interest
Arizona Developmental Disabilities Planning Council
Arizona Statewide Independent Living Council
Asian Pacific Community in Action
Assist To Independence
Autism Society of Greater Phoenix
Autism Society of Southern Arizona
Care 4 the Caregivers
Center for Common Ground
Children's Action Alliance
Direct Advocacy & Resource Center
Disability Advocacy and Policy Alliance
Disability Rights Arizona
Encircle Families (formerly Raising Special Kids)
Epilepsy Foundation Arizona
Living Innovations a Service of Mosaic
New Horizons Disability Empowerment Center
PLAN of Arizona
The Arc of Arizona
William E. Morris Institute for Justice
Arkansas
ACLU of Arkansas
Area Agency on Aging of Western Arkansas
Arkansas Community Organizations
Arkansas Immunization Action Coalition
Arkansas Independent Living Council
Disability Rights Arkansas
Epilepsy Foundation Arkansas
ILRC. Inc.
Just Communities of Arkansas
Luna Wellness
11
Mid South Liver Alliance
New Disabled South
Omni Center for Peace Justice & Ecology
Sources for Community Independent Living
Southeast Arkansas Independent Living Services
Spa Area Independent Living Services
The Arc for the River Valley
California
ACLU of Northern California
ACLU of San Diego & Imperial Counties (ACLU-SDIC)
Advisory Council to the Napa/Solano Area Agency on Aging
Agency on Aging Area 4
Aging Services Collaborative of Santa Clara County
Alameda County Advisory Commission on Aging
American Civil Liberties Union Foundation of Southern California
Archstone Foundation
Autism Society Inland Empire
Autism Society of Los Angeles
Autism Society San Diego
Autism Society San Francisco/Bay Area
Autism Society Ventura County
Bet Tzedek Legal Services
Black Californians United for Early Care and Education
CA Coalition on Family Caregiving
CA IHSS Consumer Alliance
California Advocates for Nursing Home Reform
California Alliance for Retired Americans
California Association for Adult Day Services
California Association of Public Authorities for IHSS
California Community Living Network
California Disability Services Association
California Elder Justice Coalition
California Foundation for Independent Living Centers
California Health Advocates
California IHSS Consumer Alliance (CICA)
California Long-Term Care Ombudsman Association (CLTCOA)
12
California Primary Care Association Advocates
Californians for Disability Rights Inc
Californians for SSI Coalition
CalPACE
Cardea Health
Caring Across Communities, Inc.
Center for Caregiver Advancement
Center for Independence of Individuals With Disabilities (CID)
Choice in Aging
Courage California
Dayle McIntosh Center for the Disabled
Disability Community Resource Center
Disability Rights California
Disabled Resources Center, Inc.
Eden Area Village
Epilepsy Foundation Greater Orange County
Epilepsy Foundation Los Angeles
Epilepsy Foundation of Northern California
Epilepsy Foundation of San Diego County
Equality California
Family Voices of California
FREED Center for Independent Living
General Strike US Los Angeles
Greenwood Law Corp.
Health Projects Center
Home Health Care Management Inc
Homeless Action Center
Human Services Association
ICMRS
Independent Living Resource Center San Francisco
Independent Living Resources Solano & Contra Costa Counties
Jewish Family Service LA
JLA Trust
Laguna Adult Day Health Center
Law Foundation of Silicon Valley
Legal Assistance for Seniors
13
Marin Center for Independent Living
Meals on Wheels Orange County
MSSP Site Association
Nevada County Association for the Developmentally Disabled
Ombudsman Services of San Mateo County
Opulent Mobility
PathPoint
Personal Assistance Services Council
Phatt Chance Community Services Inc
Placer Independent Resource Services
Plumas Rural Services
PRC
Resources for Independence Central Valley
Rolling Start, Inc. Center for Independent Living
Sacramento County
San Diegans for Healthcare Coverage
San Francisco Senior and Disability Action
SAVS (Sonoma Applied Villages Services)
Senior and Disability Action
Senior Services Coalition of Alameda County
Service Center for Independent Life
Silicon Valley Independent Living Center
Sonoma County Homeless Action!
Sourcewise
Special Needs Trust Foundation
St. Barnabas Senior Services
Support for Families of Children with Disabilities
The Arlene Francis Foundation
The Children's Partnership
The Gerontologist, Inc
The Public Interest Law Project
UDW/AFSCME Local 3930
Western Center on Law and Poverty
Colorado
ACCIL Association of Colorado Centers for Independent Living
ACLU of Colorado
14
Advocates for Compassionate Therapy Now
Alliance
Association for Community Living in Boulder & Broomfield Counties
Atlantis Community, Inc
Autism Society of Colorado
Autism Society Boulder County
Bell Policy Center
Center for People With Disabilities
Colorado Center for Aging Board Members
Colorado Center on Law and Policy
Colorado Coalition for the Homeless
Colorado Consumer Health Initiative
Colorado Cross-Disability Coalition
Colorado Developmental Disabilities Council
Colorado Fiscal Institute
Colorado Latino Leadership, Advocacy, and Research Organization (CLLARO) Colorado Primary Care Clinic
Colorado Respite Coalition
Colorado Safety Net Collaborative
Cystic Fibrosis United
Doctors Care
Epilepsy Foundation of CO & WY
Front Range Pediatric Therapies
Living Innovations a Service of Mosaic
Lupus Colorado
PEAK Parent Center
Show and Tell
The Arc - Jefferson, Clear Creek & Gilpin Counties
The Arc of Adams County
The Arc of Aurora
The Arc of Colorado
The Arc of Pueblo Colorado
The Arc Pikes Peak Region
The Independence Center
15
Connecticut
ACLU of Connecticut
Aspire Living & Learning
Connecticut Legal Services, Inc.
CT Shoreline Indivisible
Disabilities Network of Eastern CT, Inc.
Disability Rights Connecticut
Epilepsy Foundation of CT
Greater Hartford Legal Aid
Living Innovations a Service of Mosaic
New Haven Legal Assistance Association Inc.
PLAN of CT Inc
Proud Parents: Leadership & Encouragement for ALL Parents
Sarah Harris Was Here
Delaware
American Civil Liberties Union of Delaware
Community Legal Aid Society (Delaware)
Delaware Developmental Disabilities Council
Epilepsy Foundation of Delaware
Living Innovations a Service of Mosaic
NAMI Delaware
Parent Information Center of Delaware
The Arc of Delaware
Weston Adult Day Care
District of Columbia
American Civil Liberties Union of the District of Columbia (ACLU-D.C.)
Autism Society of the District of Columbia
Bread for the City
Cabin Creek Health Systems
Children's Law Center
DMV Sr and Disability Community Group
Epilepsy Foundation Metro D.C.
Home Care Partners
Legal Aid DC
Melwood, Inc.
Shared Horizons, Inc.
16
The Quality Trust for Individuals with Disabilities
Florida
ACLU of Florida
Center for Common Ground
Compass LGBTQ Community Center
Disability Rights Florida
Epilepsy Foundation Florida
FL National Organization for Women (FL NOW)
Florida Alliance for Retired Americans
Florida Health Justice Project
Florida Policy Institute
Florida Voices for Health
Gray Panthers of South Dade
Greater Orlando National Organization for Women (Greater Orlando NOW)
National Organization for Women, Palm Beach County
New Disabled South
Parent to Parent of Miami
Retired Public Employees Association (RPEA)
Space Coast Center for Independent Living, Inc.
Special Education Advocacy Services of Luzerne, LLC
The Pride Center at Equality Park
The Senior Care Connector Inc
Georgia
9to5 Georgia
ACLU of Georgia
Call For Caring Inc
Center for Common Ground
disABILITY LINK
Epilepsy Foundation of Georgia
Georgia ADAPT NDN
Georgia Estate & Elder Law, LLC
Georgia Values Action
Hutchinson Health and Wellness Services
Inspire Positivity Inc
New Disabled South
Parent to Parent of Georgia
17
REV UP Georgia
Serving at- risk families everywhere, Inc.
Hawaii
ACLU of Hawai‘i
Aloha Independent Living Hawaii
Epilepsy Foundation of Hawaii
Hawaii Families As Allies
Hawaii Family Caregiver Coalition
Lanakila Pacific
Responsive Caregivers of Hawaii
State Council on Developmental Disabilities
The Arc in Hawaii
Idaho
ACLU of Idaho
Disability Rights Idaho
Idaho Anti-Trafficking Coalition
Idaho Council on Developmental Disabilities
Idaho State Independent Living Council
Living Independence Network Corporation
Illinois
Access Living
Achieving Independence and Mobility Center for Independent Living
ACLU of Illinois
Added Chance
AgeOptions
Allendale Association
Alternatives (for the Older Adult, Inc.)
Angel of God Resource Center
Arrowleaf
Association House of Chicago
Autism Society of Southern Illinois
BC Consulting
Caritas Family Solutions
Chicago ADAPT
Citizen Action/Illinois
Disability Resource Center, Joliet, IL
18
Epilepsy Foundation of Greater Chicago
Family Focus
Going Home Coalition - The Arc of Illinois
Great Lakes ADA Center
Hamdard Health Alliance
Haven Youth and Family Services
Health & Medicine Policy Research Group
Housing Action Illinois
Human Resources Development Inst.
Illinois Accountability Initiative
Illinois Caregivers for Compromise
Illinois Coalition for Immigrant and Refugee Rights (ICIRR)
Illinois Collaboration on Youth
Illinois Council on Developmental Disabilities
Illinois National Organization for Women
Illinois Respite Coalition
Illinois Valley Center for Independent Living
Illinois-Iowa Center for Independent Living
IMPACT CIL
Institute on Disability and Human Development University of Illinois Chicago kaleidoscope
Kids Above All
Kmetko and Associates, Ltd.
Lakeside Community Committee
Lawrence Hall
LIFE Center for Independent Living
Living Innovations a Service of Mosaic
Lutheran Child & Family Services of IL
Molina
New Moms
Northwestern Illinois Center for Independent Living
Of Color Inc
Opportunities For Access (OFA CIL)
Over the Rainbow Association
Progress Center for Independent Living
REV UP Illinois - The Arc of Illinois
19
Senior Services Associates, Inc.
Shriver Center on Poverty Law
Springfield Center for Independent Living
The Arc of Illinois
The BRIDGE youth and family services
The Center for Youth and Family Solutions
The People’s Lobby
The Statewide Independent Living Council of Illinois
Tri-Town Young Men's Christian Association
UCP Seguin
Will County NOW
Women Employed
Indiana
accessABILITY Center for Independent Living, Inc.
ACLU of Indiana
Autism Society of Indiana
Epilepsy Foundation Indiana
Epilepsy Foundation of Kentuckiana
Great Lakes ADA Center
Indiana Disability Rights
Living Innovations a Service of Mosaic
Recreation Therapists of Indiana
Iowa
Access 2 Independence of the Eastern Iowa Corridor
American Civil Liberties Union of Iowa
Arcare, Inc.
Autism Society of Iowa
Central Iowa Center for Independent Living
Disabilities Resource Center
Disability Rights Iowa
Epilepsy Foundation Iowa
Illinois-Iowa Center for Independent Living
Iowa Developmental Disabilities Council
Living Innovations a Service of Mosaic
The Arc of Iowa
20
Kansas
ACLU of Kansas
Alliance for a Healthy Kansas
Arcare, Inc.
El Centro
Epilepsy Foundation of Missouri and Kansas
Health Forward Foundation
KanCare Advocates Network
Living Innovations a Service of Mosaic
Oral Health Kansas
Senior Services of Wichita
SKIL
JFS of Greater Kansas City
Kentucky
ACLU of Kentucky
Autism Society of Kentuckiana
Epilepsy Foundation of Kentuckiana
Independence Alliance
Kentucky Center for Economic Policy
Kentucky Protection and Advocacy
Kentucky Voices for Health
Meals on Wheels of Southwest OH & Northern KY
Mid South Liver Alliance
New Disabled South
Louisiana
Autism Society of Acadiana
Autism Society of Greater New Orleans
Autism Society-Greater Baton Rouge, Inc.
Autism Society Louisiana State Chapter, Inc.
Community Provider Association of Louisiana
Epilepsy Foundation Louisiana
LDP Disability Caucus
Mid South Liver Alliance
New Disabled South
The Arc of Louisiana
21
Maine
3i Housing of Maine
ACLU of Maine
AUTISM SOCIETY OF MAINE
Disability Rights Maine
Epilepsy Foundation New England
Living Innovations a Service of Mosaic
Maine AllCare
Maine Developmental Disabilities Council
Maine Equal Justice
Maine Parent Federation
Maryland
Accessible Resources for Independence, Inc.
Aspire Living & Learning
Autism Society of Baltimore-Chesapeake
Autism Society of Maryland
Bay Area Center for Independent Living, Inc.
Community Development Network of Maryland
Epilepsy Foundation Maryland
Home Care Partners
Main Street Connect
Maryland Center on Economic Policy
Maryland Citizens’ Health Initiative
Maryland Developmental Disabilities Council
Maryland NOW
Maryland Statewide Independent Living Council
Melwood, Inc.
Montgomery County Federation of Families for Children's Mental Health, Inc. Public Justice Center
SEEC
Shared Horizons, Inc.
SMCIL
Special Education Equal Development Society, Inc.
The Arc Baltimore
The Arc Maryland
The Arc Montgomery County
22
The Arc Northern Chesapeake Region
The Arc of Frederick County, Inc.
The Arc of Howard County
The Arc Prince George's County
The Arc Southern Maryland
The Freedom Center
The IMAGE Center of Maryland
The Maryland Statewide Independent Living Council (Maryland SILC)
The Parents' Place of MD
Trans Maryland
Massachusetts
ACLU of Massachusetts
Agencia ALPHA
Aspire Living & Learning
Autism Society of Massachusetts
Boston Center for Independent Living
Center for Living & Working, Inc
Disability Policy Consortium
Disability Resource Center
Epilepsy Foundation New England
Federation for Children with Special Needs
Health Law Advocates
Independence Associates, Inc.
Indivisible Upper Cape
MetroWest Center for Independent Living
Parent/Professional Advocacy League, Inc.
Personal Disability Consulting, Inc.
Somerville-Cambridge Elder Services
Tri-Valley, Inc.
Michigan
American Civil Liberties Union of Michigan
ASK Family Services
Autism Alliance of Michigan
Autism Society of Greater Detroit
Center for Civil Justice
CIL
23
David's House Ministries
Detroit Disability Power
Disability Network Michigan
Disability Network Mid-Michigan
Disability Rights Michigan
Epilepsy Foundation of Michigan
Great Lakes ADA Center
Incompass Michigan
Mental Health Association in Michigan
Michigan Alliance for Special Education
Michigan Developmental Disabilities Council
Michigan Developmental Disabilities Institute
Michigan Disability Rights Coalition
Michigan Elder Justice Initiative
Michigan Statewide Independent Living Corporation
MOKA Corporation
Pioneer Resources Inc.
Public Citizens of Washtenaw (formerly Gray Panthers of Washtenaw)
Southeast Michigan Senior Regional Collaborative
The Arc Michigan
The Arc of Macomb County, Inc.
Thresholds, Inc.
Tri-County Office on Aging
Minnesota
Autism Society of Minnesota
Cancer Legal Care
Epilepsy Foundation of Minnesota
Family Voices of Minnesota
Great Lakes ADA Center
Institute on Community Integration, University of Minnesota
Mid-Minnesota Legal Aid - Minnesota Disability Law Center
Minnesota Governor's Council on Developmental Disabilities
Reach for Resources
Upstream Arts
24
Mississippi
ACLU of Mississippi
Center for Common Ground
Disability Rights Mississippi
Epilepsy Foundation of Mississippi
Five Horizons Health Services
Mid South Liver Alliance
Mississippi Coalition for Citizens with Disabilities
New Disabled South
Missouri
ACLU of Missouri
Arcare, Inc.
Basri Law LLC
Community Health Commission of Missouri
Decarcerate KC
Empower Missouri
Epilepsy Foundation of Missouri and Kansas
Exceptional Humans
Health Forward Foundation
Independent Living Center of SEMO
JFS of Greater Kansas City
Kids Win Missouri
Mercer County Public Administrator
Missouri Budget Project
Missouri Coalition for Oral Health
Missouri Connections for Health
Missouri Family Health Council
Missouri Jobs with Justice
Paraquad
Rural Advocates for Independent Living, Inc.
St. Louis Integrated Health Network
Montana
ACLU of Montana
ADAPT Montana
Disability Rights Montana
Epilepsy Foundation Montana
25
Montana Chapter of the National Organization for Women
Not Dead Yet Montana
Summit Independent Living
Nebraska
ACLU of Nebraska
Arcare, Inc.
Disability Rights Nebraska
Epilepsy Foundation Nebraska
Living Innovations a Service of Mosaic
Nebraska Association of Service Providers
The Arc of Nebraska
Nevada
ACLU of Nevada
Canopy Collective
Epilepsy Foundation Nevada
Silver State Equality
The Arc of Nevada
New Hampshire
ABLE NH
American Civil Liberties Union of New Hampshire
Aspire Living & Learning
Capital Recovery Health
Chesco
Community Partners for Change, Inc
CRJ
Disability Rights Center - NH
Epilepsy Foundation New England
Kent Street Coalition
Lakes Region Community Services
Life Transition Services, LLC.
Living Innovations a Service of Mosaic
New Futures / The Alliance for Healthy Aging
New Hampshire Public Health Association
NH Hunger Solutions
NH School Nurses Association
Opportunity Networks
26
Strategies for Disability Equity
The New Hampshire Academy of Nutrition and Dietetics
TruGranite Service Coordination
Visions for Creative Housing Solutions, Inc.
Waypoint
New Jersey
Alliance Center for Independence
American Civil Liberties Union of New Jersey
Association for Special Children and Families
DAWN Center for Independent Living, Inc.
DIAL-Center for Independent Living
Disability Rights New Jersey
Down Syndrome Association of Southern New Jersey
Eden Autism Services
Epilepsy Foundation New Jersey
Family Resource Network
Family Voices NJ
Gut Healing Lab
New Jersey Citizen Action
Ocean County National Organization for Women
Planned Lifetime Assistance Network of NJ (PLAN|NJ)
Retired Public Employees Association (RPEA)
SPAN Parent Advocacy Network
Special Education Advocacy Services of Luzerne, LLC
The Arc of New Jersey
New Mexico
American Civil Liberties Union of New Mexico
Autism Society New Mexico
Center for Civic Policy
Disability Rights New Mexico
Epilepsy Foundation New Mexico
Family Caregiver Center of New Mexico
Health Action New Mexico
Health Action New Mexico
New Mexico Caregivers Coalition
New Mexico Center on Law and Poverty
27
New Mexico Coalition to End Homelessness
New Mexico Eviction Prevention & Diversion
New Mexico Voices for Children
Parents Reaching Out
New York
Autism Society Greater Hudson Region
Autism Society of America Nassau Suffolk
Autism Society Western New York
Autistic Adults NYC
Center for Common Ground
Center for Elder Law & Justice
Center for Independence of the Disabled, New York (CIDNY)
Cerebral Palsy Associations of New York State
Citizen Action of New York
City University of New York School of Law, Disability Rights and Social Justice Clinic Community Inclusion & Development Alliance
Disability Rights New York
EPIC Family of Human Service Agencies
Epilepsy Foundation of Northeastern New York, Inc.
Families On The Move of NYC, Inc.
Free the People Rochester
Fulton County Office for Aging and Youth
Gray Panthers NYC
INCLUDEnyc
Independent Living Center of the Hudson Valley
Indivisible Brooklyn
Inter Agency Council of Developmental Disabilities Agencies, Inc.
LiveOn NY
Long Island Center for Independent Living, Inc. (LICIL)
Mental Health Project at the Urban Justice Center
NAMI Huntington
National Alliance on Mental Illness of New York City
New York Civil Liberties Union/ACLU of New York
New York Lawyers for the Public Interest
NYS Caregiving and Respite Coalition
Parent Network of WNY
28
Person Centered Care Services
Resource Center for Independent Living
Southern Tier Independence Center
Special Education Advocacy Services of Luzerne, LLC
St. Lawrence County Office for the Aging
The Arc New York
The Epilepsy Insititue DBA The Epilepsy Foundation of Metro NY
The Mediation Offices of Eric A. Deutsch
North Carolina
ACLU of North Carolina
Advocates for Medically Fragile Kids NC
Autism Society of North Carolina
Care Share Health Alliance
Center for Common Ground
Council on Aging in Henderson County
Craven County
Dementia Alliance of North Carolina
Disability Rights & Resources
Disability Rights North Carolina
Epilepsy Foundation North Carolina
FIRSTwnc
Friends of Residents in Long Term Care
Guidance Carolina
HOPE North Carolina, Inc.
NC Budget & Tax Center
NC Caregiving Collaborative
NC Statewide Independent Living Council
New Disabled South
North Carolina Council of Churches
North Carolina Justice Center
North Carolina National Organization for Women (NC NOW)
North Carolina Serious Illness Coalition
Retired Public Employees Association (RPEA)
The Frankie Mae Foundation
The North Carolina Regional Ombudsman Association
Unitarian Universalist Justice Ministry of North Carolina
29
We Are Down Home
Yocasta Bianconi, LLC
North Dakota
ACLU of North Dakota
Epilepsy Foundation North Dakota
North Dakota Protection & Advocacy Project
The Arc of Bismarck
The Arc of North Dakota
The Arc Upper Valley
Ohio
ACLU of Ohio
Advancing Independence Network
Arcare, Inc.
Autism Respite PLUS, LLC
Autism Society Central Ohio
Autism Society of Greater Akron
Autism Society of Northwest Ohio
Dayton Autism Society
Disability Rights Ohio
Epilepsy Foundation Ohio
Great Lakes ADA Center
Independence Alliance
Linking Employment, Abilities & Potential
Meals on Wheels of Southwest OH & Northern KY
Ohio Association of Area Agencies on Aging
Ohio Self Determination Association
Ohio Statewide Independent Living Council
PLAN of Southwest Ohio, Inc.
Pro Seniors, Inc.
SOCIETY FOR EQUAL ASSESS/ILC
Southeastern Ohio Center for Independent Living
The Arc of Ohio
The Autism Society of Ohio
University of Cincinnati Center for Excellence in Developmental Disabilities
Western Reserve Independent Living Center
30
Oklahoma
A New Leaf, Inc
ACLU of Oklahoma
Autism Foundation of Oklahoma
Dynamic independent
Epilepsy Foundation Oklahoma
New Disabled South
Oklahoma Policy Institute
Oklahoma Statewide Independent Living Council
Oklahomans for Independent Living
REACH, Inc.
SODA - Area Agency on Aging
The Arc of Oklahoma
Oregon
Autism Society of Oregon
Disability Rights Oregon
Epilepsy Foundation Oregon
HASL Center for Independent Living
Lane Independent Living Alliance
Oregon Statewide Independent Living Council
Our Home, Inclusive Community Collaborative
UCP Oregon
Umpqua Valley disAbilities Network
Pennsylvania
ACLU of Pennsylvania
Autism Connection of Pennsylvania
Autism Society Berks County
Autism Society Greater Philadelphia
Autism Society Lehigh Valley
Autism Society Northeastern Pennsylvania
Center for Advocacy for the Rights and Interests of Elders (CARIE)
Community Legal Services of Philadelphia
Community Resources for Independence, Inc.
Disability Empowerment Center
Disability Pride Pennsylvania
Disability Rights Pennsylvania
31
Disabled in Action of PA
Eastern PA Trans Equity Project
Epilepsy Foundation Eastern PA
Goodwill Industries of Northeastern Pennsylvania
HUNE
J Badger Consulting Inc
Joanne Stiteler Senior Care, LLC
Liberty Resources Inc.
NCPA ADAPT
PASILC
Pennsylvania Association of Area Agencies on Aging
Pennsylvania Council on Independent Living
Pennsylvania Health Law Project
Roads to Freedom Center for Independent Living (RTFCIL) of North Central PA S.A.F.E., Inc - Supporting Autism and Families Everywhere
Special Education Advocacy Services of Luzerne, LLC
Williamsport NOW
Rhode Island
Advocates for Better Care in Rhode Island
Aldersbridge Communities
American Civil Liberties Union of Rhode Island
Autism Society RI
Disability Rights Rhode Island
Epilepsy Foundation New England
Living Innovations a Service of Mosaic
Ocean State Center for Independent Living (OSCIL)
Protect Our Healthcare Coalition RI
RI Long Term Care Ombudsman Program
SACRI-Senior Agenda Coalition of RI
The Village for RI Foster and Adoptive Families
South Carolina
Ability Beyond Barriers
AccessAbility
ACLU of South Carolina
Arc of the Low Country
Arc of the Piedmont Tri-County
32
Beyond Early Intervention
Center for Common Ground
Disability Rights South Carolina
Epilepsy Foundation South Carolina
Family Connection of SC
New Disabled South
Our Mother's Voice
Retired Public Employees Association (RPEA)
Serving at- risk families everywhere, Inc.
South Carolina Appleseed Legal Justice Center
South Carolina Respite Coalition
South Carolinians for Alternatives to the Death Penalty (SCADP)
TAA
The Arc of Greater Aiken
The Arc of Horry County
The Arc of South Carolina
Tri-Devlopment Center of Aiken County, Inc.Alternatives to the Death Penalty (SCADP) South Dakota
ACLU of South Dakota
Autism Society of the Black Hills
Epilepsy Foundation South Dakota
Tennessee
AbleVoices
ACLU of Tennessee
AgeWell Middle Tennessee
Autism Tennessee
Buffalo River Services, Inc.
Community Development Center
Developmental Services of Dickson County
Disability Power & Pride
Down Syndrome Association of Middle TN
Family Voices of Tennessee
FiftyForward
Memphis Lupus Support Group
Michael D. Vaughan DDS, PLC
Mid South Liver Alliance
33
New Disabled South
Raising Kellan
Statewide Independent Living Council of Tennessee - SILCTN
Tennessee Caregiver Coalition
Tennessee Community Organizations
Tennessee Disability Coalition
Tennessee Health Care Campaign
Tennessee Justice Center
Tennessee Mental Health Consumers’ Association
The Arc Tennessee
TN Coalition for Better Aging
TNSTEP- Parent Training and Information Center
Texas
ADAPT OF TEXAS
Area Agency on Aging and Aging and Disability Resource Center of the Capital Area Autism Society of Texas
Autism Society of Texas-El Paso
Center for Common Ground
Coalition of Texans with Disabilities
Disability Connections
Disability Rights Texas
Epilepsy Foundation Central & South Texas
Epilepsy Foundation of Texas
Family to Family Network
Gulf Coast ADAPT
Latino Texas Policy Center
Neurodivergent Friends
New Disabled South
REACH, Inc.
REV UP Texas
Texans Care for Children
Texas Impact
Texas Parent to Parent
The Arc of Texas
34
Utah
American Civil Liberties Union of Utah
Disability Law Center of Utah
Epilepsy Foundation Utah
OPTIONS for Independence
Vermont
ACLU of Vermont
Aspire Living & Learning
Epilepsy Foundation New England
Public Assets Institute
Vermont Center for Independent Living
Vermont Coalition for Disability Rights
Vermont Family Network
Virginia
ACLU of Virginia
Appalachian Independence Center
Autism Society of Central Virginia
Autism Society of Northern Virginia
Autism Society of Tidewater Virginia
Center for Common Ground
Charlottesville NOW (National Organization for Women)
Epilepsy Foundation Metro D.C.
Epilepsy Foundation of Virginia
FiftyForward
Home Care Partners
Melwood, Inc.
New Disabled South
Our Stomping Ground (OSG)
Shared Horizons, Inc.
Special Education Advocacy Services of Luzerne, LLC
The Arc of Virginia
Virginia Board for People with Disabilities
Virginia Organizing
Washington
ACLU of Washington
Alpha Supported Living Services
35
Asian Counseling and Referral Service
Association of County Human Services
Autism Society of Washington
Center for Independence
Community Employment Alliance
Community Residential Services Association
Disability Rights Washington
Economic Opportunity Institute
Epilepsy Foundation Washington
Homage (Senior Services of Snohomish)
Hopelink
Ladybug House
Max Higbee Center
Northwest Health Law Advocates
Office of Developmental Disabilities Ombuds
PAVE
PROVAIL
The Arc of King County
The Arc of Snohomish County
The Arc of Spokane
The Arc of Washington
The Arc of Whatcom County
The Max Higbee Community Recreation Center
Thurston Mason DD Coalition
Timber River Connections
Washington Association of Area Agencies on Aging (W4A)
Washington Multicultural Services Link
Washington Stat Budget and Policy Center
Washington State Association of the Deaf
Washington State National Organization for Women
Wilson Clinical Services, PLLC.
Wise
WSAD - Washington State Association of the Deaf
36
West Virginia
ACLU of WV
Epilepsy Foundation West Virginia
New Disabled South
Open Doors for the Developmentally Challenged, Inc.
Physicians for a National Health Program - West Virginia Chapter
West Virginia Center on Budget and Policy
West Virginia Developmental Disabilities Council
Wisconsin
Access to Independence, Inc.
Aging and Disability Professional Association of Wisconsin
Aging and Disability Resource Center of Racine County
American Civil Liberties Union of Wisconsin
Ascend Services, Inc
Autism Society of Greater Wisconsin
BRIDGE for Community Life, Inc.
Center for Caregiver Serenity Inc.
Chrysalis Inc.
Citizen Action of Wisconsin
Clubhouse Wisconsin
Community Living Alliance
Compass IL
Developmental Disabilities Coalition
Disability Rights Wisconsin
Employment Resources Inc
Epilepsy Foundation Wisconsin
Falcons Club International
Great Lakes ADA Center
Greater Wisconsin Agency on Aging Resources, Inc.
Home of Our Own, Inc.
InControl Wisconsin
Journey Mental Health Center
Little Wonders Child Care
NAMI Northwoods
Oregon Mental Health Services, LLC
Peer Specialists Limited
37
People First Wisconsin
Recovery Coalition of Dane County (Wisconsin)
Respite Care Association of Wisconsin
Save IRIS
Special Education Advocacy Services of Luzerne, LLC
The Arc Fond du Lac, Inc.
The Arc Wisconsin
The Autism Society of South Central Wisconsin
The Respite Caregiver of LaCrosse
Upstream Arts
WI Board for People with Developmental Disabilities
WI Board on Aging and Long Term Care
WI Survival Coalition of Statewide Disability Organizations
Wisconsin Aging Advocacy Network
Wisconsin Alliance for Excellent Schools
Wisconsin Autism Empowerment
Wisconsin Coalition Against Sexual Assault
Wisconsin Coalition of Independent Living Centers
Wisconsin Family & Caregiver Support Alliance (WFACSA)
Wisconsin Family Ties, Inc.
Wispact, Inc.
Wyoming
ACLU of Wyoming
Better Wyoming
Epilepsy Foundation of CO & WY
Healthy Wyoming
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